Your participation and opinion is vital. We need a good cross-section of TMers for the resulting data to be valid.
The survey takes 20 to 30 minutes to do.
Click here to do the Prioritisation Survey. LAST DATE OF SUBMISSION IS 31 MAY 2014
Click here to do the Prioritisation Survey. LAST DATE OF SUBMISSION IS 31 MAY 2014
The TM Society is working with the Spinal Injuries Association and Cauda Equina Society to seek out patients' priority questions for research in the field of spinal injury. The list is being compiled in three steps; an open request for research questions, a voting on those questions posed to create a list of the top 30 and then finally a workshop to produce 10 research questions from the list of 30.
The first step has been completed. In all, a total of 784 research questions were proposed (of which over 25% were proposed by TMers) and after a great deal of work to eliminate duplicates and ensure that the questions could be answered by research, the list was reduced to a long list of 84.
We are now at the second stage of the process. Based on the response to the 84 questions posed, the list will be further reduced to 30 questions by those that take part in the Prioritisation Survey.
In early July, there will be an all day workshop attended by patients, carers and professionals to decide the top ten research questions.
As a matter of interest, a similar exercise was done last year for MS and the research questions that made the top ten were:
1. Which treatments are effective to slow, stop or reverse the accumulation of disability associated with MS?
2. How can MS be prevented?
3. Which treatments are effective for fatigue in people with MS?
4. How can people with MS be best supported so that they can try to self-manage their condition?
5. Does early treatment with aggressive disease-modifying drugs improve the prognosis for people with MS?
6. Is vitamin D supplementation an effective disease-modifying treatment for MS?
7. Which treatments are effective in improving the mobility of people with MS?
8. Which treatments are effective to improve cognition in people with MS?
9. Which treatments are effective for pain in people with MS?
10. Is physiotherapy effective in reducing disability in people with MS?
1. Which treatments are effective to slow, stop or reverse the accumulation of disability associated with MS?
2. How can MS be prevented?
3. Which treatments are effective for fatigue in people with MS?
4. How can people with MS be best supported so that they can try to self-manage their condition?
5. Does early treatment with aggressive disease-modifying drugs improve the prognosis for people with MS?
6. Is vitamin D supplementation an effective disease-modifying treatment for MS?
7. Which treatments are effective in improving the mobility of people with MS?
8. Which treatments are effective to improve cognition in people with MS?
9. Which treatments are effective for pain in people with MS?
10. Is physiotherapy effective in reducing disability in people with MS?
RSS Feed
