The SIA has introduced a new service especially for people who have spinal injuries that are facing a trip to the hospital. Not all hospitals have the expertise to deal with the implications of a patient who has a spinal injury. The SIA has produced guidelines to ensure that your SCI-related care needs are met. Click here to find out more.
The aims of this study were: (1) to explore what patients and caregivers with rare diseases and limited treatment options considered of value when choosing between hypothetical therapeutic options and (2) to quantify both their benefit-risk preferences and the influence of disease context. The results of the study, as published in Orphanet Journal of Rare Diseases can be found here.
The TMS committee jointly contributes to this blog.