
![]() The SIA has introduced a new service especially for people who have spinal injuries that are facing a trip to the hospital. Not all hospitals have the expertise to deal with the implications of a patient who has a spinal injury. The SIA has produced guidelines to ensure that your SCI-related care needs are met. Click here to find out more.
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The aims of this study were: (1) to explore what patients and caregivers with rare diseases and limited treatment options considered of value when choosing between hypothetical therapeutic options and (2) to quantify both their benefit-risk preferences and the influence of disease context. The results of the study, as published in Orphanet Journal of Rare Diseases can be found here.
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July 2023
AuthorThe TMS committee jointly contributes to this blog. Categories |