How the TMS helps members
The TMS exists to assist members through the provision of information, personal support and financial assistance. These services are delivered in a number of ways, including:
Family Weekends for Children
The Transverse Myelitis Society had their first family weekend in 2015. These weekends are for children aged 4-17 who have Transverse Myelitis (TM), Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (NMO), and Acute Flaccid Myelitis (AFM) with their siblings and their parents.
The purpose of the weekend was to bring families together to share experiences, learn, support one another and develop friendships. They are held at the Calvert Trust, in the Lake District over a weekend in July. There was a range of activities such as sailing, horse riding, trap driving, archery and more. with opportunities for all to take part in. Medical and healthcare professionals were also there and there were educational sessions for parents.
Family Weekend 2015
Family Weekend 2016
Family Weekend 2017
Family Weekend 2018
Family Weekend 2019
Due to the Covid-19 pandemic, Family Weekends have not been held in 2020 or 2021.
AGMs, Conferences and Away Days
The TM Society, as well as holding an Annual General Meeting that all members are welcome to attend, frequently put on events with special speakers and workshops. You can see pictures and presentations from previous meetings in the Information tab.
Neurophysio Bursary Scheme
Many of our members have found that seeing a neuro-physiotherapist helps them minimise the residual effects of having had TM, even if their original episode of TM was years before. The bursary scheme exists to encourage members who are not already under the care of a neuro-physio to have two sessions of treatment. More information here.
Equipment Grant Scheme
The Equipment Grant Scheme enables members to access funding for equipment which aids in their rehabilitation, ability to self-care, and/or ability to maintain or increase their independence and/or quality of life. Each grant application is considered individually and flexibly by the TMS Grants Subcommittee (all TMers themselves), which aims to provide a speedy decision to TMS members.
The relevant documents can be downloaded by clicking below:
This service is for members who have an issue to resolve, really want to achieve something new, or would welcome help adjusting to living with TM, ADEM, NMO. Coaching is a series of confidential, purposeful conversations between you and a coach where you work together to figure out what you want to achieve and develop an action plan to do that. The Coaching Bursary consists of 6 coaching sessions with an experienced qualified coach. You will need to pay £30 (£5 per session) and the TM Society will pay the remainder of the costs. More information about the coaching session and how to take part can be found by clicking here.
Family Relationship Coaching
This service is available to families where an adult or child is affected by TM, ADEM, NMO, MOG, AFM or ON. With the help of a highly skilled Coach, a series of sessions are offered at heavily discounted rates to help find ways to get past some of the challenges that have arisen. More information here.
We often get feedback at support group meetings and at conferences about how beneficial it is to meet someone else with TM. If cost is preventing someone from getting to a support group meeting, there is a Travel Bursary that can be used to enable everyone to have this experience at least once. See the Support Group page for information.