Transverse Myelitis Society Privacy Policy
The Transverse Myelitis Society (“we”, “our” or “TMS”) takes the privacy of all visitors to this website very seriously, and therefore sets out in this Privacy Policy our position regarding certain privacy matters. This Privacy Policy covers all data that is shared by a visitor with us, whether directly via myelitis.org.uk or via any other mode of communication.
Information we collect
In pursuit of our charitable objectives of providing you with information, support and advice and raising the awareness of the public and medical professions of Transverse Myelitis, we may collect and process the following data about you:
- Information that you provide by filling in forms on our website.
- Information provided to us when you communicate with us for any reason.
Use of your information
The information that we collect and store relating to you is used primarily to enable the TMS to provide you with information and support, and to inform you about TMS activities. By joining the TMS, you give your consent for the TMS to use your information for these charitable purposes only, and not for any commercial purposes.
The TMS will share your membership details with relevant members within the TMS community including Support Group Leaders, volunteers and third parties who support the TMS by helping to organise and deliver its activities and service to you, only in pursuit of our charitable objectives. Whenever membership data is shared, the TMS Committee will ensure that this Privacy Policy is made explicit.
The TMS promotes research into Transverse Myelitis and related disorders as we believe this will ultimately benefit our members. Data that we collect may be analysed as de-identified data (ie, individuals are not identifiable), and only aggregate results reported and used to learn more about TM and related disorders, and to make reasonable conclusions about the population that may be helpful in designing registries and clinical trials.
Storing your personal data
Data that we collect from you may be transferred to locations outside of the European Economic Area for processing and storing. Also, it may be processed by staff operating outside the European Economic Area who work for us or for one of our suppliers. By submitting your personal data, you agree to this transfer, storing or processing. We will take all reasonable steps to make sure that your data is treated securely and in agreement with this Privacy Policy.
Third party links
This website contains links to other websites. These websites should have their own privacy policies, which you should inspect before providing any personal information. TMS does not accept any responsibility for other websites’ policies as we have no control over them.
Access to your information and correction
You have the right to request the information we hold about you. If you would like a copy of your membership details, please email or write to us using the contact information below. We want to make sure that your membership details are correct and up to date. You may ask us to correct or removed information you think is inaccurate.
Contacting us
We welcome any queries, comments or requests you may have regarding this Privacy Policy. Please do not hesitate to contact us by email or via the Contact page.
Membership
If for any reason you decide that you no longer wish to remain as a member of the TMS, you can delete your membership from the Contact Us page on our website.
