Blog Posts

Toby is doing the mini-marathon on 28th April to raise funds for TMS

7/4/2019

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Toby is racing in the Mini Marathon wheelchair event in London, on 28th April.

The course is three miles long, stretching from London's Old Billingsgate to The Mall open to young athletes, 11 to 17.

Please support him by making a donation to his Just Giving account.

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Fundraiser Concert in Pinner - the Harrow Apollo Male Choir

30/3/2019

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Why not come along to a concert on Saturday 15th June, 2019 7:30 at the Pinner Methodist Church, Love Lane, Pinner, HA5 3EE?

Tickets £10 and proceeds to the TM Society.

More details here.

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AGM held on 23rd March 2019

29/3/2019

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Sally Rodohan (Chair) welcomed everyone to the AGM. She introduced Caroline Cabraal who has volunteered to take over the Treasurer job. Sally paid tribute to Jean Anthony who had done the Treasurer job for 14 years and remained on the TMS Committee.

Standing in for Jean, Lew Gray (Secretary) reviewed the accounts for 2018, and provided a review on fundraising and the on-going services and grants supplied to members. He also reported that there were 216 new members in 2018, including 21 children. Sally spoke briefly about the changes in legal requirements and the progress the society was making in adopting new policies. Sally invited Barbara Babcock to give an overview of the structure and purpose of the Family Weekend that happens in July at the Calvert Trust.

Caroline Cabraal was elected to the Committee, and Rob Reeves was re-elected. Sally repeated that new volunteers were always encouraged to come forward and join the Committee at any time, which only meets five times a year.

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Thanks to Birkdale Neuro Rehab Clinic for raising £2652!

13/2/2019

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Birkdale Neuro Clinic organised and hosted a Christmas party to benefit the TM Society. They provided amazing food and drinks, and those attending had a marvelous time - fundraising at its best! Our thanks to all those that helped, as well as everyone that made a donation.

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Josh is running the Coventry half marathon on 24th March

1/2/2019

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Josh and Sophie

Josh is running his first half marathon and raising funds for the TM Society. His niece Sophie, was recently diagnosed with Acute Flaccid Myelitis.

Please help him reach his target by clicking here and making a donation.

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Neurological Patient Experience Survey - deadline 22nd March 2019

29/1/2019

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The TM Society is a member of the Neurological Alliance (NA) of charities. Every two years since 2014 the NA surveys thousands of neurological patients in ENGLAND about their experience of the health and social care system.

In the last survey in 2016, we had an excellent response of 172 members. If you can take 15-20 minutes to complete the survey online – by 22 March – you will be helping everyone with TM. This is an opportunity to improve awareness and information of TM in the health and social care system. Results will be analysed separately for TM and NMO (but not ADEM).

The Neurological Alliance publishes a full analysis of the Patient Experience Survey. The results of the 2016 survey can be found here https://www.neural.org.uk/resource_library/falling-short/ Unfortunately the report showed that the quality of care for neurological patients actually went DOWN from 2014 to 2016. See page 5 in the pdf report if you want to see brief detail (ie time to diagnosis, how the diagnosis was communicated, care plan or not, quality of care, health and care professionals working together).

When you are ready to do the survey click on this link http://www.myonlinesurvey.co.uk/NA18PAT/

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TM Society AGM -23rd March 2019 - 2:00

29/1/2019

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The AGM for the TM Society will take place at 2:00 on 23rd March 2019 at Arcadis House. Refreshments will be served, and closer to the time, we will be asking people to register for that reason.
Directions can be found on the London Support Group web page.

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2019 Family Weekend - 5th-8th July

26/1/2019

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The TM Society will be holding their 5th Family Weekend again at the Calvert Trust.

The purpose of the Family Weekend is to bring together children and and young people living with TM, ADEM, NMO or AFM. It is frequently the first time when a child meets another child with the same condition. Registration will be open from 6th February to 5th March 2019.

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Dr Arif Ghazi, Pain Consultant, is speaking at the London SG on 19 January

9/1/2019

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Dr Arif Ghazi

Qualifications: BSc, MBBS, FCARCSI, FIPP

Dr Ghazi will be our guest speaker at the January meeting of the London Support Group. He is a Consultant in Pain Medicine at The Royal Free London Foundation Trust.

There will be ample time and opportunity to ask questions and for discussion, so come along. Details of time and place, and directions, can be found on the London Support Group page.

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A Night at the Races raises £1200 for the TM Society

11/11/2018

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Our thanks go to Sally Rodohan for organising a Night at the Races at the East Finchley Constitutional Club on 3 November. And also sincere thanks to the generosity of everyone who attended resulting in a net donation to the TM Society of £1200. If you think you might like to do something similar, drop Sally an email.