Toby is racing in the Mini Marathon wheelchair event in London, on 28th April.
The course is three miles long, stretching from London's Old Billingsgate to The Mall open to young athletes, 11 to 17.
Please support him by making a donation to his Just Giving account.
Standing in for Jean, Lew Gray (Secretary) reviewed the accounts for 2018, and provided a review on fundraising and the on-going services and grants supplied to members. He also reported that there were 216 new members in 2018, including 21 children. Sally spoke briefly about the changes in legal requirements and the progress the society was making in adopting new policies. Sally invited Barbara Babcock to give an overview of the structure and purpose of the Family Weekend that happens in July at the Calvert Trust.
Caroline Cabraal was elected to the Committee, and Rob Reeves was re-elected. Sally repeated that new volunteers were always encouraged to come forward and join the Committee at any time, which only meets five times a year.
In the last survey in 2016, we had an excellent response of 172 members. If you can take 15-20 minutes to complete the survey online – by 22 March – you will be helping everyone with TM. This is an opportunity to improve awareness and information of TM in the health and social care system. Results will be analysed separately for TM and NMO (but not ADEM).
The Neurological Alliance publishes a full analysis of the Patient Experience Survey. The results of the 2016 survey can be found here https://www.neural.org.uk/resource_library/falling-short/ Unfortunately the report showed that the quality of care for neurological patients actually went DOWN from 2014 to 2016. See page 5 in the pdf report if you want to see brief detail (ie time to diagnosis, how the diagnosis was communicated, care plan or not, quality of care, health and care professionals working together).
When you are ready to do the survey click on this link http://www.myonlinesurvey.co.uk/NA18PAT/
The AGM for the TM Society will take place at 2:00 on 23rd March 2019 at Arcadis House. Refreshments will be served, and closer to the time, we will be asking people to register for that reason.
Directions can be found on the London Support Group web page.
The TMS committee jointly contributes to this blog.