 Josh and Sophie | Josh is running his first half marathon and raising funds for the TM Society. His niece Sophie, was recently diagnosed with Acute Flaccid Myelitis. Please help him reach his target by clicking here and making a donation. |
|
0 Comments
In the last survey in 2016, we had an excellent response of 172 members. If you can take 15-20 minutes to complete the survey online – by 22 March – you will be helping everyone with TM. This is an opportunity to improve awareness and information of TM in the health and social care system. Results will be analysed separately for TM and NMO (but not ADEM).
The Neurological Alliance publishes a full analysis of the Patient Experience Survey. The results of the 2016 survey can be found here https://www.neural.org.uk/resource_library/falling-short/ Unfortunately the report showed that the quality of care for neurological patients actually went DOWN from 2014 to 2016. See page 5 in the pdf report if you want to see brief detail (ie time to diagnosis, how the diagnosis was communicated, care plan or not, quality of care, health and care professionals working together). When you are ready to do the survey click on this link http://www.myonlinesurvey.co.uk/NA18PAT/  The AGM for the TM Society will take place at 2:00 on 23rd March 2019 at Arcadis House. Refreshments will be served, and closer to the time, we will be asking people to register for that reason. Directions can be found on the London Support Group web page.
Not only did he raise awareness for ADEM, which he had when he was 4, but he raised an amazing amount £743 for the TM Society. Want to top up his justgiving total? Click here.
|
Archives
June 2019
AuthorThe TMS committee jointly contributes to this blog. Categories |
RSS Feed
