Blog Posts

Over £1600 raised by TVH associates by abseiling down Queen's House

22/9/2018

Jonny Clowes

The event took place on 19th September 2018. The mayor of Twickenham was opening the new 22 metre high building, Queen's House.

To add to the fun and excitement of the occasion, the colleagues and partners of Thames Valley Housing decided to raise money for the TM Society by abseiling down the new building.

Here is their justgiving page.

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Rick Eckersley is in the Rochdale 10K on 7th October

20/9/2018

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Rick Eckersley

Rick is jogging the Williams BMW Rochdale 10K to raise funds for the TM Society.

Rick's sister, Suzanne Bradshaw, had TM twelve years ago.

Wish him luck, and even better, make a donation through justgiving.

Suzanne Bradshaw

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Danny is doing a 10K walk on 27th October

20/9/2018

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Danny, age 11, is doing a 10K walk to raise awareness for ADEM and to raise funds for the TM Society. Please help him by making a donation! Here is the link - justgiving

When Danny was four, he was diagnosed with ADEM and was paralysed and unable to talk, but he recovered well.

Danny attended the TM Family Weekend this year at the Calvert Trust and became a 'camp counsellor'.

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Oli cycled the Prudential 100 and raised £2721

12/5/2018

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On the 29th July, Oli took on the Prudential Ride 100, cycling 100 miles through London and Surrey in the world's largest cycling event!

He is raising funds for the TM Society. You can see his Virgin Money Fundraising page here.

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Oli ran the London Marathon and raised £3958 for the TM Society

25/4/2018

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Huge thanks to Oli who ran the London Marathon on 22 April.

In his words, 'The marathon was a fantastic experience on so many levels. It really was an day that I will never forget.'

If you'd like to contribute, click here.

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Elspeth runs the Edinburgh Kilomathon

12/4/2018

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The run went well – it was a beautiful spring day in Edinburgh with sunshine and light winds – stark contrast to what I’ve trained in! I was delighted with my time of 1 hour 9 minutes.

With gift aid, my final total is an amazing £1,658.12. I’m really delighted I’ve been able to help.

Elspeth, with her sister and brother-in-law, who she says were her inspiration to get her back into running.

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Kirsty is walking 300 miles on 1st April

29/3/2018

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Kirsty is doing a 300 mile walk starting on 1st April for the TM Society.

You can read more about her story on her VirginMoneyGiving site. Please help her along with a donation.

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TM and NMO event in Belfast - 9th May

28/3/2018

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Sadly, this event has been cancelled due to lack of participants.

For those of you in Northern Ireland and Ireland - The NMO Specialist Service from the Walton Centre in Liverpool has a patient information evening booked in BELFAST for those of you living with NMO and TM - 9th May 7-9pm at the Park Inn.

If you are interested in attending, please RSVP via email nmo.advice@thewaltoncentre.nhs.uk or call 0151 529 8357. They are very keen to run this session, but at the moment, it doesn't have enough people signed up to justify running it. It's a great opportunity to get good info from a team that knows a lot about TM and NMO!

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Elspeth is running the Kilomathon (13.1 km)

24/3/2018

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The Edinburgh Kilomathon is on Sunday 8th April and Elspeth is running her first race since having TM in November 2012.

She says, 'I was very quickly diagnosed and had fabulous care at the Western General Hospital in Edinburgh. It was a long recovery, but I have been one of the lucky ones to make a fairly good one.'

Elspeth has raised over £1000 for the TM Society so far, and you can make a donation at her justgiving site. She says 'it's a way of saying thank you to you all for being there and I also wanted to raise awareness of the condition.'

Elspeth

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Charlie and Mollie's 5th Birthday Party

24/3/2018

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Mollie and Charlie

For their 5th birthday party, Charlie and Mollie, with almost 40 friends plus their parents, boarded a narrow gauge steam train for a fun journey. Everyone was treated to beautiful views of the snow-covered countryside, as luckily the weather hadn't cancelled the proceedings. Upon return, everyone enjoyed a party tea at the station cafe.

Charlie and Mollie both decided that instead of receiving gifts from their friends for their birthday, they would each raise money for a charity close to their hearts. Charlie chose the TM Society, as a way to say thank you, for the help he has received since he was diagnosed with TM at age two. The total raised for the TM Society was an amazing £270.

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