| Sue Keeling lives in East Knoyle, Wiltshire and has applied to do the London Marathon three times unsuccessfully. After being diagnosed with TM, she started to run (aged 60) as a way to keep as fit as possible. She has run two half marathons for charity and set herself the task to run a marathon for charity before her 65th birthday. With Covid, this became an impossibility so she and her two daughters set out to walk one 'for fun' days before becoming 65. It was with great delight that she took up the offer of doing the London Marathon for the TMS - with just 12 weeks to go! Sue also makes fabulous jewelry and sells great necklaces and earrings that make lovely gifts. Half of every sale benefits the TM Society, so go ahead... have a look at GiftsForGiving. |  Sue at the Salisbury Half Marathon Click here to go to her Virgin Money Giving page. |
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When you or a loved one become ill with a rare neuro-inflamatory condition, everyone else in the family can be affected. Family Relationship Coaching can help your family explore the issues arising to help develop solutions that can work for your family. Families where an adult or child is affected by TM, ADEM, NMO, MOG, AFM or ON are eligible, and a family can be defined as a group of individuals who care about and care for each other whether you are biologically related or not. The offering is supported and made affordable through the TM Society. See more here.
Our friends at SRNA in USA have put together a Q&A session with Dr Ben Greenberg, on the topic of vaccinations for TMers. The update covers latest announcements about Covid vaccines, the different technologies being used, what is happening next etc. Dr Greenberg also advises re flu vaccinations. The Q&A session lasts 23 minutes and can be viewed in the SRNA channel on YouTube here. Dr. Benjamin Greenberg is an internationally recognized expert in treating adults and children with autoimmune disorders of the central nervous system. He specializes in treating patients with transverse myelitis (TM), neuromyelitis optica (NMO, or Devic’s disease), and multiple sclerosis (MS), as well as children with TM, MS, and other conditions such as autoimmune encephalitis and acute demyelinating encephalomyelitis (ADEM).
The eventual aim is to identify the top 10 questions which researchers can draw on when they are seeking to research potential treatments for these conditions. Because this process is rigorous, funders know these research questions have been well thought out and not been looked at before. Here is the link. The closing date is 18 January 2021.
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