News blog

Elspeth runs the Edinburgh Kilomathon

12/4/2018

The run went well – it was a beautiful spring day in Edinburgh with sunshine and light winds – stark contrast to what I’ve trained in! I was delighted with my time of 1 hour 9 minutes.

With gift aid, my final total is an amazing £1,658.12. I’m really delighted I’ve been able to help.

Elspeth, with her sister and brother-in-law, who she says were her inspiration to get her back into running.

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Kirsty is walking 300 miles on 1st April

29/3/2018

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Kirsty is doing a 300 mile walk starting on 1st April for the TM Society.

You can read more about her story on her VirginMoneyGiving site. Please help her along with a donation.

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TM and NMO event in Belfast - 9th May

28/3/2018

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Sadly, this event has been cancelled due to lack of participants.

For those of you in Northern Ireland and Ireland - The NMO Specialist Service from the Walton Centre in Liverpool has a patient information evening booked in BELFAST for those of you living with NMO and TM - 9th May 7-9pm at the Park Inn.

If you are interested in attending, please RSVP via email nmo.advice@thewaltoncentre.nhs.uk or call 0151 529 8357. They are very keen to run this session, but at the moment, it doesn't have enough people signed up to justify running it. It's a great opportunity to get good info from a team that knows a lot about TM and NMO!

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Elspeth is running the Kilomathon (13.1 km)

24/3/2018

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The Edinburgh Kilomathon is on Sunday 8th April and Elspeth is running her first race since having TM in November 2012.

She says, 'I was very quickly diagnosed and had fabulous care at the Western General Hospital in Edinburgh. It was a long recovery, but I have been one of the lucky ones to make a fairly good one.'

Elspeth has raised over £1000 for the TM Society so far, and you can make a donation at her justgiving site. She says 'it's a way of saying thank you to you all for being there and I also wanted to raise awareness of the condition.'

Elspeth

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Charlie and Mollie's 5th Birthday Party

24/3/2018

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Mollie and Charlie

For their 5th birthday party, Charlie and Mollie, with almost 40 friends plus their parents, boarded a narrow gauge steam train for a fun journey. Everyone was treated to beautiful views of the snow-covered countryside, as luckily the weather hadn't cancelled the proceedings. Upon return, everyone enjoyed a party tea at the station cafe.

Charlie and Mollie both decided that instead of receiving gifts from their friends for their birthday, they would each raise money for a charity close to their hearts. Charlie chose the TM Society, as a way to say thank you, for the help he has received since he was diagnosed with TM at age two. The total raised for the TM Society was an amazing £270.

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Oli Wilshire is running in the London Marathon

16/1/2018

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Oli, who won a place in this year's London Marathon, has named the TM Society to benefit from his efforts. We are very grateful, and wish him lots of luck.

Oli chose the TM Society because his wife had TM three years ago.

This is an amazing challenge - particularly, to someone who hasn't run a marathon before. We'll be thinking about him over the next few months when he puts in the hours doing those long training runs, and again on the day itself - 22nd April 2018.

If you'd like to give him a bit of encouragement, here is a link to his justgiving page.

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Family Weekend - 6th to 9th July 2018

16/10/2017

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The 2018 Family Weekend will again be held at the Calvert Trust in the Lake District. Registration will open in February 2018.

An email with more information about the weekend will be sent out in December to all TM Society members who have registered a child who will be in the age range of 4 - 17 when the event occurs.
Joining the TM Society is free and only takes a minute or two - click here to join.

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Tony and Michael - Ay up! Yorkshire Sportive

1/10/2017

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CONGRATULATIONS are in order to Anthony Mctaggart and Michael Jones who on 30th September completed a 93 mile bike ride in 8 hours and 3 minutes to raise money for the TMS. The weather was quite nice (not too hot) until the last hour where the heavens opened and we got soaked.

We had a lot of support there off the friends and family. Click here to add to our total.

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Arch to Arc in 24 hours

6/9/2017

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Ravi and Ricci Hannah, plus other friends, cycled from Marble Arch to the Arc de Triomphe on 27th July 2017 raising over £3000 for the TM Society. Their mother Carol, who has had TM since 2011, is shown below in Paris at the finish line. Click here to see more or make a donation.

at the finish line

at the start

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£400 raised for TM Society at the Tibshelf Carnival

26/7/2017

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Thanks to Anne Hurt and Kath Crawford who raised £400 for the TM Society with their stand at the Tibshelf Carnival in Derbyshire on Saturday 22nd July 2017.