The British Paediatric Neurology Association (BPNA) and James Lind Alliance (JLA) have launched a survey to define the Top 10 unanswered questions about the Treatment of Childhood Neurological Conditions.
They are asking children affected by a neurological condition (like TM, ADEM, and many many others), and their parents, and their siblings, and adults who experienced the onset of one of these condtions aged 1-18 years to complete their survey. They will be looking for the questions that patients and carers have regarding the effectiveness of treatments.
The eventual aim is to identify the top 10 questions which researchers can draw on when they are seeking to research potential treatments for these conditions. Because this process is rigorous, funders know these research questions have been well thought out and not been looked at before.
Here is the link. The closing date is 18 January 2021.
The Apollo Harrow choir gave a concert at the Pinner Methodist Church on 15th June. It was well attended and raised over £1500. Thanks to the organisers, Viv and Alan Raggett. If you missed the concert, but would like to contribute to the sum raised, the link to Viv's justgiving is here.
The TMS committee jointly contributes to this blog.