 | The TM Society is a member of the Neurological Alliance (NA) of charities. Every two years since 2014 the NA surveys thousands of neurological patients in ENGLAND about their experience of the health and social care system. |
In the last survey in 2016, we had an excellent response of 172 members. If you can take 15-20 minutes to complete the survey online – by 22 March – you will be helping everyone with TM. This is an opportunity to improve awareness and information of TM in the health and social care system. Results will be analysed separately for TM and NMO (but not ADEM).
The Neurological Alliance publishes a full analysis of the Patient Experience Survey. The results of the 2016 survey can be found here https://www.neural.org.uk/resource_library/falling-short/ Unfortunately the report showed that the quality of care for neurological patients actually went DOWN from 2014 to 2016. See page 5 in the pdf report if you want to see brief detail (ie time to diagnosis, how the diagnosis was communicated, care plan or not, quality of care, health and care professionals working together).
When you are ready to do the survey click on this link http://www.myonlinesurvey.co.uk/NA18PAT/
The Neurological Alliance publishes a full analysis of the Patient Experience Survey. The results of the 2016 survey can be found here https://www.neural.org.uk/resource_library/falling-short/ Unfortunately the report showed that the quality of care for neurological patients actually went DOWN from 2014 to 2016. See page 5 in the pdf report if you want to see brief detail (ie time to diagnosis, how the diagnosis was communicated, care plan or not, quality of care, health and care professionals working together).
When you are ready to do the survey click on this link http://www.myonlinesurvey.co.uk/NA18PAT/
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