The Prevention of Recurrent Symptomatic Urinary Tract Infections in Patients with Chronic Neurogenic Bladder Dysfunction Study
The study will strive to produce a consensus derived definition of UTI patients with neurogenic bladder dysfunction.
The results of the study will better inform doctors on how to treat UTIs in people living with spinal cord injury.
It's easy to take part. You can either go online and fill in the questionnaire or the study can be carried out by phone at a time convenient to you.
Click here to download the flyer.
The next TM Society Family Weekend will be held at the Calvert Trust in the Lake District from 8-11 July 2016.
If you want to see what the Family Weekend of 2015 was like, click here.
Although the registration for the 2016 event has closed, you could go on the waiting list by clicking here.
Euan's Guide is the disabled access review website and app and are the lead sponsor of Disabled Access Day.
If you have a child in your family with TM, ADEM or NMO, then save the date for the 2016 Family Weekend.
Alan Simpson, Amanda Gibbs and Lynn Winton will be organising this event. More details and booking forms will be posted on this site shortly.
The TM Society would like to thank Bobby Allen, his football friends, the Association of Former Manchester United Players (AFMUP) and Manchester United for their very kind donation of £1,000.
Bobby played for Manchester United's youth team and reserves from 1953 to 1957. The idea to make a donation originated with Bobby and the AFMUP agreed. The donation was made on behalf of Bobby's son, Paul Allen, who lives with TM.
For those who use equipment like catheters or Peristeen, the SIA has a great service for members called SIA Healthcare where they deliver your supplies (as well as medication if needed) to your home.
The service has many benefits, including: a personal adviser (who will get to know you and your individual needs), combined deliveries of supplies and medication that will come when you need them (one call, one order and one delivery) and a flexible approach to placing your order each month by email or they will ring you. That means that you will no longer have to have an excess stock or unwanted boxes around home - and, the service can even deliver to you while you are on holiday. They also include Complimentary Items with your order which are tailored to suit your needs.
The service is offered to SIA members (you can join for free) who are using urology/bowel management equipment. Click here to look at the service on the SIA's website.
These study days cover subjects including the physical and psychological impact of non-traumatic spinal cord injuries (those incurred through illness like TM), the importance of timely diagnosis and the care pathway. This is a great opportunity for the TM Society to raise awareness and educate health care professionals about Transverse Myelitis and the related conditions ADEM, NMO and Optic Neuritis.
The days are geared to professionals working in district general hospitals and rehabilitation centres who treat spinal cord injured patients. The study day is CPD accredited and free to attend. For further information, please email Sandra White. Or to book a place, click here.
London - 3 September 2015 at Resource for London, Islington, N. London.
Manchester - 5th November 2015 at the Park Inn by Radisson.
The first study day was held in Birmingham on 24th June and attracted 58 healthcare professionals.
As a result of this presentation:
- 29 healthcare professionals have become members of the TMS
- 13 professionals from eight hospitals and rehabilitation centres that would like the TM Society to deliver an educational session to their staff
- nine physios and two nurses from eight centres are interested in a TMS physiotherapy Special Interest Group.
The TMS committee jointly contributes to this blog.