Katie Simpson ran the Big 5K Fun Run at Milton Keynes on 18th October 2015 at Willen lake. Katie, who is 7, had TM when she was 15 months old.
She completed the race in 45 minutes and raised £220 for the TM Society. For more info or to donate, this is a link to her JustGiving page.
These study days cover subjects including the physical and psychological impact of non-traumatic spinal cord injuries (those incurred through illness like TM), the importance of timely diagnosis and the care pathway. This is a great opportunity for the TM Society to raise awareness and educate health care professionals about Transverse Myelitis and the related conditions ADEM, NMO and Optic Neuritis.
The days are geared to professionals working in district general hospitals and rehabilitation centres who treat spinal cord injured patients. The study day is CPD accredited and free to attend. For further information, please email Sandra White. Or to book a place, click here.
London - 3 September 2015 at Resource for London, Islington, N. London.
Manchester - 5th November 2015 at the Park Inn by Radisson.
The first study day was held in Birmingham on 24th June and attracted 58 healthcare professionals.
As a result of this presentation:
- 29 healthcare professionals have become members of the TMS
- 13 professionals from eight hospitals and rehabilitation centres that would like the TM Society to deliver an educational session to their staff
- nine physios and two nurses from eight centres are interested in a TMS physiotherapy Special Interest Group.
Emma Atkinson did an Olympic distance triathlon on 30-31 May 2015 and raised over £1300 for the TM Society.
The next TMA 'Ask the Expert' Podcast'is at 18:00 UK time on 22 January titled "Understanding Vaccinations and Autoimmune Diseases"
The next TMA 'Ask the Expert' Podcast'is at 18:00 UK time on 9 December on 'Understanding Transverse Myelitis: TM101'
Join The TMA’s “Ask the Expert” Podcast Series on
Understanding Transverse Myelitis: TM 101
On December 9, 2014 at 1:00 PM Eastern Time
Experts on the panel joining us are Sanford Siegel, PhD from the TMA, Audrey Ayres, RN, BSN and Katherine Treadaway, LCSW from The University of Texas Southwestern and Children’s Health System in Dallas. Some of the questions to be answered are:
What is Transverse Myelitis? Is it one disease or a syndrome? How is it diagnosed? Why do doctors think it is autoimmune? Is there a biomarker or a blood test? Why is everyone affected differently and yet diagnosed with TM? Why are some people who have the same lesion I have in my spinal cord being diagnosed as having NMO? What is the difference? Will therapies for NMO help a TM patient? Why did my immune system get affected this way? Is there a genetic cause? What do we know about the therapies and how they impact outcome?
Click here to find out more and register.
Have you ever felt like there was something you really wanted to achieve, an issue you wanted to resolve, a question you wanted to answer, or you would welcome help adjusting to living with TM, ADEM or NMO?
This new service of coaching is available to you, whether you have TM/ADEM/NMO, are a carer, or a parent of a child with TM/ADEM/NMO. Coaching is a series of confidential purposeful conversations between you and a coach where you work together to figure out what you want to achieve and develop an action plan to do that. The Coaching Bursary consists of 6 coaching sessions with an experienced qualified coach. You will need to pay £30 (£5 per session) and the TM Society will pay the remainder of the costs. Click here to download a full description, including 'how to apply'.
The TMS committee jointly contributes to this blog.