Alan Simpson is riding from Lands End to John O'Groats to raise money for the TM Society Family Weekend.
Alan is one of the parents that helps organise the Family Weekend at the Calvert Trust. His daughter Katie had TM in 2009. You can read more about their story and make a donation by clicking here.
The SIA has introduced a new service especially for people who have spinal injuries that are facing a trip to the hospital. Not all hospitals have the expertise to deal with the implications of a patient who has a spinal injury. The SIA has produced guidelines to ensure that your SCI-related care needs are met. Click here to find out more.
The aims of this study were: (1) to explore what patients and caregivers with rare diseases and limited treatment options considered of value when choosing between hypothetical therapeutic options and (2) to quantify both their benefit-risk preferences and the influence of disease context. The results of the study, as published in Orphanet Journal of Rare Diseases can be found here.
Have your say today!
The survey is open until 30th SEPTEMBER.
If you live in England and have a neurological condition, the Neurological Alliance (NA) would like to hear from you.
WHY? By completing the survey, you will help the NA understand how much progress has been made in improving neurological services, and what still needs to be improved.
Great food, and a fabulous day out. An amazing £766-60 was raised for the TM Society. Special thanks to Danielle and Scott for organising and hosting this fantastic event.
Please join us for a great day out to raise funds and awareness for the TM Society. We have an 'all you can eat' BBQ, a children's play area, a raffle with fab prizes, a cake sale, a full bar open all day, a sweetie stall and much more. Everyone welcome, the more the merrier. You don't have to have TM to come along and enjoy the fun, bring your family and friends.
Tickets only £7.50 and includes a full BBQ and your first raffle ticket. Kids go free!!!
The event will take place at the East Finchley Constitutional Club, The Walks, London, N2 8DE (turn into Park Road from High Road, if you are driving and you will see The Walks and the Club car park).
Email Danielle for tickets.
The TMS committee jointly contributes to this blog.