Penny Winton age 10 and George Bowyer age 9 were joined by family and friends at Stonehaven Leisure Centre to celebrate TM Awareness Day. Both Penny and George suffered attacks of TM which resulted in complete paralysis due to inflammation of their spinal cords. They both fought hard to get over this terrifying ordeal and are now both back at school and joining in all activities.
Nearly £1000 funds have been raised so far!!
The Cardiff Millennium stadium on 14th May was home to a fundraiser organised by Buphinder Sidhu and Sandip Gill for a football match between England XI vs Wales XI. The event raised an fantastic £3218.50 for the Transverse Myelitis Society and the MS Society.
Well done and thanks to everyone that was involved.
You can still donate by clicking here.
The Johns Hopkins Transverse Myelitis Center (JHTMC) is excited to announce the 1st Regional Transverse Myelitis Clinical Care Symposium. Patients, family members, and caregivers impacted by the diagnosis of Transverse Myelitis (TM) and other rare neuro-immunologic disorders on a day-to-day basis are invited to attend. Medical practitioners who are interested in understanding more about the management of these disorders but are less familiar with its
long-term impacts are also welcome!
YouTube film of all the talks given can be linked to from here.
Our 9th AGM was held on 13 April 2013 at EHCL. Two significant actions occurred. The London Support Group has been split out formally from the Committee and we also have a new Chairman. Yvonne Kolesar stood down as Chairman of the TMS Committee, but will continue as the Leader of the London Support Group. Barbara Babcock and Rob Reeves were re-elected to the Committee and Barbara was elected to be the new Chairman. Barbara went through the priorities for 2013.
Minutes are available for downloading here.
Our 9th Annual General Meeting will be held at EC Harris, 34 York Way, London N1 9AB (next to Kings Cross Station), on Saturday 13th April, at 1:45 for 2:00 pm. All members are invited to attend the AGM and to elect the 2013 TMS Committee and express your opinion about what you want TMS to be doing in the coming year. If you are unable to attend the meeting and you would like to make a comment or suggestion, you can email Lew Gray (firstname.lastname@example.org or use the Contact page), with your message and he will read it out at the AGM.
TM Awareness day is not far away. Raise awareness, possibly some money and have fun!!
This is 'our' day to work together to raise the profile of TM. By raising awareness, we hope that rapid diagnosis of TM will be more frequent and that everyone will be given the support necessary for coping with the long term symptoms of TM.
We want to encourage people to hold events for family and friends, on or around 9th June. Click here to read about fun things to do and why the events are so important to us. We're suggesting a 'TeaM Party' theme, bringing to mind cups of tea, cakes and biscuits. Have information available for guests to read and ask for a donation to raise money.
Get started now planning your event. It needn’t be limited to a tea party. How about a garden sale or stall in you local Sunday market? Last year members did sponsored cycle rides, had plant sales, cleared out sheds and let go of blue balloons. How about a BBQ? Read more about last year's awareness events on page 4 of Issue 1 of the TMS Magazine.
The TMS committee jointly contributes to this blog.