Vivien Raggett, one of our TMS members, has won the prestigious Marsh Award for 'Volunteering in Support of Older People'. She has coordinated the Harrow Group of Contact the Elderly since 2007 and despite getting TM, continued with the help of her husband Alan (on occasions from hospital), to ensure that the once a month tea parties for her group continued without interruption. To quote the award givers, 'Vivien and her husband truly deserve this Award for their sheer dedication, determination, hard work and contribution to the work of Contact the Elderly and the difference they make to the lives of so many people in their community.'
Contact the Elderly is always looking for volunteer drivers and hosts. Your help can make a real difference to the lives of older people who no longer are fortunate enough to have family or friends nearby. Find out more here.
For people who find Bristol & Exeter too far to travel to, there will be a Support Group meeting held on Saturday the 12th of July from 1.00 till 3.00 in Taunton.
The venue is just off the M5 at Junction 25 at the Holiday Inn Express (not at the Holiday Inn which is right next door). It is behind the Murco Garage.
We are booked in to the Blake Room just ask at Reception for directions.
If you have any questions, please get in touch with Rob Reeves.
On Thursday 22nd May, BBC 2's Horizon programme launched the Longitude Prize 2014. The Longitude prize is a challenge with a £10 million prize fund to help solve one of the greatest issues of our time. Six areas have been identified and one will be awarded the main focus of the Longitude Prize. One of the areas identified is paralysis. And as we all know, TM and similar conditions such as NMO can cause paralysis. We know that paralysis affects many aspects of life not just movement, and these include health, access and employment. Should the area of paralysis win the vote, the challenge set will be to invent a solution that gives paralysed people sustainable freedom of movement, improving the user’s quality of life and alleviating some of the broader challenges of paralysis. Voting for the Longitude Prize is open now until 25 June and we encourage you to vote for paralysis in order to aid the progression of work in this area. Find out more about the Longitude Prize and how you can vote for paralysis at www.longitudeprize.org
TMA's ASK THE EXPERT PODCAST SERIES - The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury - 16 JUNE 2014
Your participation and opinion is vital. We need a good cross-section of TMers for the resulting data to be valid.
The survey takes 20 to 30 minutes to do.
Click here to do the Prioritisation Survey. LAST DATE OF SUBMISSION IS 31 MAY 2014
The TM Society is working with the Spinal Injuries Association and Cauda Equina Society to seek out patients' priority questions for research in the field of spinal injury. The list is being compiled in three steps; an open request for research questions, a voting on those questions posed to create a list of the top 30 and then finally a workshop to produce 10 research questions from the list of 30.
The first step has been completed. In all, a total of 784 research questions were proposed (of which over 25% were proposed by TMers) and after a great deal of work to eliminate duplicates and ensure that the questions could be answered by research, the list was reduced to a long list of 84.
We are now at the second stage of the process. Based on the response to the 84 questions posed, the list will be further reduced to 30 questions by those that take part in the Prioritisation Survey.
This event coincides with Transverse Myelitis Awareness Day and all proceeds go to the TMS.
Find out more information here.
Neuro-centres of excellence
Our one day conferences this May were well attended and were a resounding success. They were held at two of the UK's major neurological centres of excellence, enabling us to build on relationships with medical staff at each centre and also, to provide an activity in the north for our TMS members. We went for a one day format, with a programme consisting of 4 or 5 speakers and plenty of time for question/answer sessions and ample time for delegates to talk to other participants.
The TMS committee jointly contributes to this blog.