Do you want to take part in psychological research about pain?
If so, you can find a bit more information and a link to the survey here.
Do you have pain as a symptom of TM?
Do you want to take part in psychological research about pain? If so, you can find a bit more information and a link to the survey here.
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Birkdale Neuro Rehab Centre is hosting a summer BBQ in aid of the Transverse Myelitis Society. Entry will be £20 per head and kids go FREE. There will be a professional BBQ cook present with plenty of salads and cakes too. Address and contact details are on the flyer.
Some of our members will have met Denise Fitzgerald at our Oxford Conference in 2014 and heard her speak about her research into remyelination at Queen's University Belfast. Queen’s University Belfast scientists have discovered that specific cells from the immune system are key players in brain repair. The research study, led by Dr Yvonne Dombrowski and Dr Denise Fitzgerald at the Wellcome-Wolfson Institute for Experimental Medicine at Queen’s University Belfast, is being hailed as a landmark study in unravelling the mysteries of how the brain repairs damage. The major new discovery is covered in this BBC news posting and you can read more about the discovery here on the Queens University Belfast website.
The SIA has introduced a new service especially for people who have spinal injuries that are facing a trip to the hospital. Not all hospitals have the expertise to deal with the implications of a patient who has a spinal injury. The SIA has produced guidelines to ensure that your SCI-related care needs are met. Click here to find out more. The aims of this study were: (1) to explore what patients and caregivers with rare diseases and limited treatment options considered of value when choosing between hypothetical therapeutic options and (2) to quantify both their benefit-risk preferences and the influence of disease context. The results of the study, as published in Orphanet Journal of Rare Diseases can be found here.
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July 2023
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