The Transverse Myelitis Society has agreed to be a Study Partner to explore how patients affected by rare or genetic conditions and their caregivers define 'value' when thinking about new medicines.
The survey is intended for both individual's affected by rare/genetic conditions and their care givers. Participants in the survey must be living in the UK. It will take about 20 minutes to complete. The survey is open until 15 November 2014. Click here to read more about the study and begin.
This survey is aimed at patients and caregivers affected by a rare or genetic disease living in the United Kingdom. It has been approved by King’s College London Biomedical Sciences, Dentistry, Medicine and Natural and Mathematical Sciences Research Ethics Subcommittee (reference: BDM/12/13-49).
The TMS committee jointly contributes to this blog.