The Spring London support group meeting was preceded by the TM Society's Annual General Meeting (AGM), chaired by Sally Rodohan, President. After the 2016 AGM minutes were approved and the 2016 accounts were presented, Les Strachan was elected to the TM Society Committee.
The remainder of the afternoon was spent with a presentation by Prof. Caroline Young from the Walton Centre titled 'Following a diagnosis of TM, what you need to know', followed with plenty of time for questions and discussion. Prof. Young is almost unique within the NHS being a Consultant Neurologist as well as a Consultant in Rehabilitation Medicine and the afternoon was a great success.
Some of our members will have met Denise Fitzgerald at our Oxford Conference in 2014 and heard her speak about her research into remyelination at Queen's University Belfast.
Queen’s University Belfast scientists have discovered that specific cells from the immune system are key players in brain repair. The research study, led by Dr Yvonne Dombrowski and Dr Denise Fitzgerald at the Wellcome-Wolfson Institute for Experimental Medicine at Queen’s University Belfast, is being hailed as a landmark study in unravelling the mysteries of how the brain repairs damage. The major new discovery is covered in this BBC news posting and you can read more about the discovery here on the Queens University Belfast website.
The SIA has introduced a new service especially for people who have spinal injuries that are facing a trip to the hospital. Not all hospitals have the expertise to deal with the implications of a patient who has a spinal injury. The SIA has produced guidelines to ensure that your SCI-related care needs are met. Click here to find out more.
The aims of this study were: (1) to explore what patients and caregivers with rare diseases and limited treatment options considered of value when choosing between hypothetical therapeutic options and (2) to quantify both their benefit-risk preferences and the influence of disease context. The results of the study, as published in Orphanet Journal of Rare Diseases can be found here.
Have your say today!
The survey is open until 30th SEPTEMBER.
If you live in England and have a neurological condition, the Neurological Alliance (NA) would like to hear from you.
WHY? By completing the survey, you will help the NA understand how much progress has been made in improving neurological services, and what still needs to be improved.
Great food, and a fabulous day out. An amazing £766-60 was raised for the TM Society. Special thanks to Danielle and Scott for organising and hosting this fantastic event.
Please join us for a great day out to raise funds and awareness for the TM Society. We have an 'all you can eat' BBQ, a children's play area, a raffle with fab prizes, a cake sale, a full bar open all day, a sweetie stall and much more. Everyone welcome, the more the merrier. You don't have to have TM to come along and enjoy the fun, bring your family and friends.
Tickets only £7.50 and includes a full BBQ and your first raffle ticket. Kids go free!!!
The event will take place at the East Finchley Constitutional Club, The Walks, London, N2 8DE (turn into Park Road from High Road, if you are driving and you will see The Walks and the Club car park).
Email Danielle for tickets.
The TMS committee jointly contributes to this blog.