The survey should take between 15 and 30 minutes to complete depending on the detail of information you wish to provide. Survey data will bring together and update a variety of different pieces of research Carers UK has done in previous years to get an up to date picture of caring in 2014. The survey will be published later in the year.
To take part in the Carers UK Survey 2014, click here.
The Backup Trust is looking for supporters for their vital new campaign for children with SCI.
They want to see clear NHS pathways to ensure:
Stakeholders Meeting on 1 April 2014 in Birmingham
They need your support and input! Click here to see how you can help by sharing your stories, your views or attending on the day.
Topics being discussed will include Living With TM, Coping With TM Emotionally and Clinical and Research Neurology. There will be plenty of time for Questions and Answers and lunch will be included. If these one-day Conferences are well received, then we will consider holding similar TM Conferences in other UK regions.
Many members have found that even after having had TM for years, that working with a neuro-physio can help with functional issues like balance and pain. At this workshop, you can book for a short session to explore whether physio sessions might help you.
At The Birkdale Clinic, West London - 8 free appointments available
There are camps for seriously ill children, for siblings of seriously ill children and for family groups where there is a child with a serious illness. Camps are always free of charge.
The Rebuilding lives after SCI awards recognise and celebrate the outstanding achievements of people in the SCI community. This could be individuals out in the community that go out of their way to support others or fundraise for SIA, or heathcare professionals that contribute to the treatment and care of spinal cord injured people.
We all know someone who goes that extra mile. Why not recognise their achievements by nominating them for an award? Click here to look at the award categories, FAQs and nominate someone today!
This report was completed by the Transverse Myelitis Society in October 2013 for use by assessors at ATOS and CAPITA when assessing people living with Transverse Myelitis for the Personal Independence Payment (PIP). PIP helps with some of the extra costs caused by long-term ill-health or a disability for UK citizens aged 16 to 64.
The report has four sections:
1. An overview of Transverse Myelitis
2. How Transverse Myelitis may impact an individual’s daily life
3. Recommended communication approach to claimant with this condition at PIP assessment
4. Misconceptions about the condition.
Section 2 aligns to the PIP criteria and Section 3 aligns to how the PIP assessors work, however, the information may be useful to anyone living with TM whether they are applying for PIP or not.
Click here to download a copy of the report.
Derek Viljoen and friends complete the GRIM Challenge on 30 November and exceed their target raising over £1600 for the TMS
The TMS committee jointly contributes to this blog.