The TMS has launched a new Equipment Grant Scheme. Financial assistance will be given to help fund equipment which aids rehabilitation, ability to self-care, and/or ability to maintain or increase independence and/or quality of life. The grants are given to members on a first come first served basis, to a value of 50% of the equipment cost, up to a maximum of 50% of the equipment cost, up to a maximum of £1000.
The application process was piloted this summer by Colin Davis who received a grant under this scheme to help fund the purchase of a special basketball wheelchair for his son Matthew who is participating in the Salisbury's UK School Games this year.
For more information, see Our Services page.
The Neurological Alliance is a campaigning organisation – the collective voice of over 80 brain and spine charities and other key stakeholders in England, including the TMS.
For the first time, the NA is undertaking a survey of neurological patients’ experiences. TMS is encouraging all members who live in England to complete the survey (it will take around 15 minutes). The deadline is 15th September.
The results of the survey will help us compare TM diagnosis and treatment to other conditions, and also to compare how neurological patients are treated in different parts of UK. This information will feed into a report later this year with recommendations how care can be improved. Thank you for your help.
Click here for the survey.
About the survey
The Transverse Myelitis Society has agreed to be a Study Partner to explore how patients affected by rare or genetic conditions and their caregivers define 'value' when thinking about new medicines.
The survey is intended for both individual's affected by rare/genetic conditions and their care givers. Participants in the survey must be living in the UK. It will take about 20 minutes to complete. The survey is open until 15 November 2014. Click here to read more about the study and begin.
This survey is aimed at patients and caregivers affected by a rare or genetic disease living in the United Kingdom. It has been approved by King’s College London Biomedical Sciences, Dentistry, Medicine and Natural and Mathematical Sciences Research Ethics Subcommittee (reference: BDM/12/13-49).
Her Mum, Viv pictured above to the right, has completed this run three times for charity.
Viv recently featured in a News Blog when she won the 'Volunteer of the Year' award for keeping her Contact the Elderly group running even though she herself was in hospital.
See more and register by clicking here.
For people who find Bristol & Exeter too far to travel to, there will be a Support Group meeting held on Saturday the 12th of July from 1.00 till 3.00 in Taunton.
The venue is just off the M5 at Junction 25 at the Holiday Inn Express (not at the Holiday Inn which is right next door). It is behind the Murco Garage.
We are booked in to the Blake Room just ask at Reception for directions.
If you have any questions, please get in touch with Rob Reeves.
On Thursday 22nd May, BBC 2's Horizon programme launched the Longitude Prize 2014. The Longitude prize is a challenge with a £10 million prize fund to help solve one of the greatest issues of our time. Six areas have been identified and one will be awarded the main focus of the Longitude Prize. One of the areas identified is paralysis. And as we all know, TM and similar conditions such as NMO can cause paralysis. We know that paralysis affects many aspects of life not just movement, and these include health, access and employment. Should the area of paralysis win the vote, the challenge set will be to invent a solution that gives paralysed people sustainable freedom of movement, improving the user’s quality of life and alleviating some of the broader challenges of paralysis. Voting for the Longitude Prize is open now until 25 June and we encourage you to vote for paralysis in order to aid the progression of work in this area. Find out more about the Longitude Prize and how you can vote for paralysis at www.longitudeprize.org
The TMS committee jointly contributes to this blog.