TM Association/TM
Society
JOIN and DONATE
www.myelitis.org/memberform.htm
www.myelitis.org/donations.htm
Amazon.co.uk - Everytime you buy something through Amazon a 4% commission is donated directly to Transverse Myelitis Society. Click on link.
The Giving Machine - Just register as a 'giver' then go to your choice of online shops such as Marks and Spencers and John Lewis and your chosen store does the rest at no extra cost for you! Brilliant!!!
See link below
http://www.thegivingmachine.co.uk/go_shopping.php
TM Conference April 1-3 2011 Bedforshire Wyboston Lakes Conference Centre
Click on You Tube Link for videos of the TM Conference 2011:
TM Association
Home
www.myelitis.org
TM Message Forum
www.myelitis.org/forum/
United Kingdom TM Support Groups Message Forum
www.myelitis.org/forum/viewforum.php?f=21
MS Society
www.mssociety.org.uk
MS Society Membership covers a bi-monthly magazine 'MS Matters'. This
is very informative with articles often closely linked and relevant to
Transverse Myelitis. Free booklets are available also from the MS Society
and at our group meetings on topics from fatigue management to continence
and relationship issues.
Our Support
Group has joined links with the Osborne Centre for Multiple Sclerosis
in
West Parley.
They have
a
day centre
Monday,
Tuesday and
Thursday.
We are able to
access the neuro physiotherapist there for assessment and treatment.
Membership is £5 per year and well worth joining! Please
email membership@ms-bournemouth.co.uk for membership enquiries and access
their website:
www.ms-bournemouth.co.uk
You will be assimilated
to your nearest group according to your postcode
unless you specifically inform the MS Society that you wish to go to
a different
branch of
your choice, which some members may do as the Poole/Bournemouth TM
Group covers a wide geographical area.
Facebook | Transverse Myelitis UK
Transverse Myelitis Awareness Day UK June 9th 2012 - Jo Gillfillan one of the Poole TM Support Group Members is the Awareness Day Coordinator for this. She plans to organise with the help of the TM Society Committee and UK TM Group Leader to hold TeaM parties to raise awareness and the profile of the Charity. See her Facebook page for the Awareness Day. There is also a Twitter page under TM Awareness UK. www.facebook.com/groups/165583246856635
Neurological Alliance - The Neurological Alliance now have an interesting and informative web site - Please have a look! http://www.neural.org.uk
Hampshire Neurological Alliance - Mission Statement: The Hampshire Neurological Alliance aims to obtain the best possible care and support for all people living in Hampshire and Isle of Wight who are affected by a neurological condition
Elizabeth Richards 'Physio-Neuro' Based in Shaftsbury will cover Hampshire, Dorset, Wiltshire, Somerset. See flyer.
Wessex Driveability - Formerly Southampton Mobility Centre, they are a charitable organisation for assessment of all ages of people with disability and medical conditions in enabling them to drive or travel as a passenger whilst maintaining the individuals independent lifestyle. See Web site www.wessexdriveability.org.uk Call 023 80512222 For more information.
Caring for Carers
Princess Royal Trust For Carers
(includes Care for the Carers and Young Carers)
0844 0800 4361 General helpline
0808 808 7777 Helpline Wednesday/Thursday 10am-12pm and 2pm-4pm
Carers Direct Helpline
0808 802 0202 Monday-Friday 8am-9pm Saturday/Sunday 11am-4pm
Carers UK
www.patient.co.uk gives useful advice on carers allowance and provides links to other services/benefits
Family Action
Under this can you put this link for Disability Action and add attachment as down loadable PDF.
Disability Action
A community support, management and monitoring service for people with long-term neurological/neuromuscular condition
Download their leaflet:
PDF
Tel: 01202 705496
E-mail: disability.action@dorset.nhs.uk
Changing Places Campaign - See this fantastic website for specially adapted changing places, disabled toilets with hoists and changing bed areas
Department for Work and Pensions (DWP):
Jobcentre Plus
www.jobcentreplus.gov.uk/JCP
Directgov
(For information about benefits)
www.direct.gov.uk/en/MoneyTaxAndBenefits/index.htm
(For support about getting back to work)
www.direct.gov.uk/en/DisabledPeople/Employmentsupport/index.htm
Research
A Primary
Care Guide to Transverse Myelitis
www.myelitis.org/articles/Primary_MD_Guide_article.pdf
What is Transverse Myelitis
Published article for The Royal College of Nursing Continence Forum Newsletter - January 26th 2010
Mary Bergin's own personal account as a nurse and person with Transverse Myelitis of Continence Issues and TM.
RCN_article_TM_Nov_2009(amended_Oct_2011)
Candida - An Overview Written by Jo Gilfillan - Member of Poole TM Support Group and Physiotherapist with TM
CANDIDA_OVERVIEW_APRIL_11
Fundraising Events
POOLE/BOURNEMOUTH TRANSVERSE MYELITIS SUPPORT GROUP
Sponsored Walk 2011
15 Group Member's, Family, Friends and dogs took part in our second sponsored walk on June 5th 2011. We walked in the pouring rain from Poole Quay to Whitecliffe and back (approx 4 miles) and raised a fantastic £1780.86! This money was raised to support the Poole TM Group and the neuro physiotherapy session's that we run prior to three out of four group meetings per year. Thank you to all of you who took part and got soaked in the process!
DONATION FROM MOWER RACE AUGUST 2011
The Poole TM Support group were delighted to receive a donation for £1005.26 in August from Stephen Bell who organised a sponsored Mower Race at the Barley Mow near Wimborne to raise funds and awareness of Transverse Myelitis in memory of his Mum who sadly died in April 2010 following a diagnosis of TM and NMO. Mary Bergin attended a cheque presentation on August 28th, see pictured below standing in the middle of the race track!
It was their wish to use the money to continue to raise awareness about TM and the Poole Support Group.
The Committee have therefore decided use some of this money to advertise the group meetings and put a write up in local papers and magazines with an article about TM. to help raise awareness and the profile of the charity.
A huge thank you to Stephen and his family for the donation.
Sponsored Walk for TM Research April 18th 2010
21 group members from the Bournemouth/Poole TM Support Group along with their partners, family and friends, took part in a 5km sponsored walk from Boscombe to Bournemouth Pier and back on April 18th 2010. Together we helped to raise awareness of the TM Society and raise money for research into Transverse Myelitis currently being undertaken by Consultant Neurologist Dr Anu Jacob at The Walton Neurological Hospital in Liverpool. The TM Society are also helping to fund the first phase of Dr Jacobs research, as British research into TM has not been done before. It is therefore essential to raise awareness and the profile of this rare condition. We raised a whopping £2450.71!!! A huge thank you to all who took part from the Bournemouth area and a special thank you to two people who travelled from Surrey to be part of the walk! We plan another Sponsored Walk on June 5th 2011 - watch this space for further information.
L-R Sue Bridge from Surrey, Teresa Bryant, Darren Trapp, Mary Bergin, Val Knowles, Andrew Bergin, Yvonne Trapp, Barbara Sadler |
| |
L-R Teresa Bryant, Peter Poll, Lynda Hutchins (Mary's Mum) Mary Bergin, Andrew Bergin, Val Knowles, Barbara Sadler. Dogs - Martha, Ginny, Willow, Bella and Lilly |
| |
L-R Mary Bergin, Andrew Bergin, Val Knowles and Lynda Hutchins. Dogs - Martha, Bella, Willow, Ginny and Lilly |
Charity Skydive Summer 2009
Wells and Glastonbury Young Farmers Club from Somerset have decided to have The Transverse Myelitis Society as their chosen charity for this year. The main reason is because the father of three of our members suffers from the condition. After a very informative talk by Patrick's wife, Janet Biss, we agreed that it would be worthwhile trying to raise money for the TM Society as it is not as widely supported as some other charities. To help raise money we are doing a Charity Skydive in Honiton on September 6th 2009. Total raised to date for Poole Support Group and TM Society £8394.65!!
Top row (l-r) Dan Veale, Michelle Holland and Mike Biss
Bottom Row (l-r) Tom Rowlands, Andy Biss and Ali Trippick
Terry + Ann Sparling, Frank Devine, Teresa Bryant 
Angela + Lance Harris and friend
Yvonne Trapp 
